The
prognosis was grim. Nengah Widiasih, a four-year old in the isolated Balinese
village of Karangasem, was so badly crippled she could only crawl.
That was
1998. She was a victim of polio. She seemed doomed to live out a short life
in penury and pain, illiterate, unemployable, a burden on her family, getting
no government help.
This year
she was the only woman representing Indonesia at the 20th
Paralympics in London. Next year she plans to enter university.
Her
extraordinary turnaround is the result of determination – her own and those of
assertive advocates for the disabled working outside government.
So far
Nengah has won medals in China, Thailand and Malaysia. At the 2011 ASEAN
ParaGames she collected gold, lifting 87 kilograms. In four years time she
hopes to be at the Paralympics in Rio de Janeiro.
Nengah
competes in the 40-kilogram class, meaning she has to clock in under that
weight and be as ruthless about her diet as any fashion model.
Powerlifting
looks like a Star Chamber procedure for persuading sinners to recant. Athletes
lie on their backs under a rack holding a horizontal bar. Weights are added at each end; the bar has
to be raised with arms fully extended. It’s a lone sport competing against a
number. The preparation is psychological and physical.
Competing
as a disabled athlete is no soft option. According to Paralympics International
“winning is determined by skill, fitness, power, endurance, tactical
ability and mental focus.”
Despite her impressive achievements no
business has offered sponsorship. While other athletes train in gear blossoming
with the logos of local and multinational companies Nengah wears a simple red
and white top emblazoned with one word – Indonesia.
“Paralympians
don’t attract the same attention as other athletes,” she said. “It shouldn’t be so. Nobody asks to be
disabled. We train just as hard to achieve excellence on top of having a
handicap.”
Indonesia
doesn’t take the Paralympics seriously. Only four athletes (and 11 officials)
went to London. This was the first year a team returned with a medal, David Jacobs’ bronze in table tennis. The other contestants were swimmer Agus
Ngaimin and long jumper Setiyo Budi Hartono.
Singapore,
with just two per cent of the Archipelago’s population, sent eight athletes,
Malaysia 23.
While the
athletes were training in Solo, Indonesian
Olympic Committee chairwoman Rita Subowo was reported as saying the small
number was due to “a lack of preparation and poor facilities.
“In the future we must improve training facilities,” she said. “We must change our vision and make Olympics and Paralympics our highest targets.”
“In the future we must improve training facilities,” she said. “We must change our vision and make Olympics and Paralympics our highest targets.”
Nengah
believes she contracted polio when a doctor used a dirty syringe, though the
highly infectious disease is usually transmitted through contaminated
food.
Also known
as infantile paralysis, polio was once a major threat to young children,
particularly those in the tropics and poverty.
However aggressive international immunisation programs have almost
eliminated the disease.
The last
big outbreak in Indonesia was in 2005 when more than 200 children were
paralysed.
Nengah
wasn’t the only member of her family stricken.
Her older brother Gede Suartaha was also infected. The karmic view prevailed - that the
commission of sins had caused the family’s distress.
The
crippled kids were kept out of sight and school. Their lives lurched into a new orbit only when discovered by
Latra Nengah, working for the Yakkum rehabilitation center in Yogya, on a quest
to winkle out the handicapped for help.
At first
Nengah’s stonemason father refused fearing his daughter might disappear.
Eventually he yielded for Latra had credibility and a silver tongue. Originally
from the Balinese backblocks he’d been burned in an accident, treated by Yakkum
and returned. Later he started a rehab
centre in Bali.
Nengah
bussed to Yogya, got callipers, had an operation to help correct her twisted
leg and spent two months in hospital.
After physiotherapy and so many injections she can no longer bear
another needle she returned home upright, started school and took up
powerlifting, a sport her brother had also entered.
She uses
equipment supplied by Paralympics Indonesia and stored at the Yayasan
Pembinaan Anak Cacat
(Institute for the handicapped) where she boards and trains four times a week.
On a recent
trip to New Zealand funded by Kiwi philanthropist Dr Gareth Morgan she saw
world class facilities for the disabled, including purpose-built classrooms,
special sports grounds and horse riding for the disabled.
Four wheel
electric scooters, widely used by the disabled, also attracted. However heavy traffic and potholed roads in
Bali would make their use impractical, she said.
“We have
laws in Indonesia ensuring wheelchair access to public buildings, but they
don’t seem to get implemented,” she said.
“”My school has two stories and no lift.”
Nengah can
walk for about 300 meters on level ground using a single crutch, but getting up
stairs is difficult. She strives to be
independent, resisting help even when she takes a tumble.
Her
overseas tours and successes have given her status and responsibility. “I know that I’ve now become someone others
look up to, and that means having to speak in public” she said.
“People
keep asking me questions. They hear
what I say but can never experience what I feel. So I prefer telling about
myself through Facebook, communicating with everyone.”
Her entries
include passionate poems like the following:
Mother, your noble teachings have settled my life.
My surroundings have changed, I have seen so much.
Sometimes I get washed away,
Sometimes I stand straight to challenge its heavy flow.
“If you
have a dream you must work hard to achieve it,” she said. “I want all handicapped
people to have the opportunities that I’ve had, and to follow me if that’s what
they wish. I hope to study at
university – maybe computing – and keep competing.
“I want to
bring back more medals for my country.”
(First published in The Jakarta Post, 9 November 2012)
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